Tuesday 2 June 2015

Transplant postponed

So, Lauren was due to be admitted into the RAH tomorrow (3/6/15) in preparation for transplant on June 10. However, it's been called off for now as her last blood reading had blast cells present and they're not prepared to go ahead with transplant with these blast cells present. From a bone marrow biopsy a couple of weeks ago, blasts cell reading was 3% and not present in the blood readings. Whereas it is now in the blood reading.
Plan (on the run at this stage) is to give Lauren the trial drug that she missed out on at start of this relapse (due the hat drawing system bureaucrats use), get her blasts cells down to zero and take her straight into transplant.

Means she's not going into hospital tomorrow and we wait for the trial drug to get here. With a long weekend here coming up, can't see any movement at the station until next week. Not what we wanted to hear, but WTF do you do? The cord blood is here and ready to go for transplant. Just need to get her blast cells down first (fingers crossed!!)

In the meantime, Lauren has been busy getting out with friends as she has an immune system currently.
From a surprise get together with her AC Arts colleagues on Saturday, to her Canteen mates on Sunday and her Camp Quality family last night for a surprise dinner - thanks to the organisation skills of a certain brilliant nurse!!! ES!!

So more news next week at this stage. Been through this before and must say, getting numb to the 'left field' changes with transplant.




Funny, we've gone from wanting her to maximise time out of hospital, now we want her in there.....for the right reasons!!!

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