Wednesday 20 August 2008

Update #46. Day +20

Hb 83
WBC 4.46
PLT 108
N 3.9

Itchiness from GVHD now all over Lauren's body. Comes and goes like the waves at Coogee. She has some creams to use to help, but the drugs to knock her out seem to eventually have the best impact. Don't know what to do to help her as it's not on her skin's surface, though I think she's playing it up for all it's worth as she now gets a foot massage each night from Mum or Dad - whoever's on shift. Fever is now low grade which always is an improvement in how she feels.

Had her first guitar lesson from the music therapist this afternoon. Went a whole 5 minutes before she was too tired, but she's keen to do this each day. Her taste buds seem to be coming back slowly following the radiotherapy/chemo.

Tonight is her 30th night in this bed & room. Her limbs are aching a bit, more from the lack of use and any muscle tone in her limbs has all but gone. She has a few sips of drink through the day, but her main feed is via the nasal tube and TPN (total parenteral nutrition) which is intravenously fed to her for ongoing nutrition.