Tuesday 5 August 2008

Update #31. Day +5

HB 69
WBC 0.04
PLT 23
N 0.0

- Blood transfusion (2 units) today which should see a rise in tomorrow's HB reading.
- Platelet transfusion as well (1 unit)
- CT scan carried out as routine due to fever persisting greater than 72 hours. Scan was clear. Temp exceeded 40 degrees in early hours of the morning.
- Been Lauren's worst day yet in how she's feeling. She's in pain but being managed appropriately via one of the numerous pumps and corresponding drugs.

Kate & Nathan had their first Sydney sports carnival at their new school today. Nathan got a third place, Kate two thirds and a fourth. They're really settling in well in this school and are thriving on the harder challenges in work load and planning. I have changed my opinion of public schools for the better if Rainbow St is typical of the public system (no offence meant for St Johns, Bruce!!).

Took Kate & Nathan to Coogee beach this afternoon for the first time since arriving here - was able to because volunteers from a corporate were cooking dinner for any families at Ronald McDonald House tonight, which freed up some time for us. Whilst we're not staying there, they invited any families from the ward. Was good to catch up with other families over dinner. Exchanged war stories - eg. a lady who's been travelling up to the Sydney Children's for over 11 years, since her daughter was 1!!!! because she (daughter) has persistent inoperable brain tumours that keep reappearing and she's now nearly lost all her sight. The longest stint they've gone without having to be up here is a whole 18 months!!! Unbelievable!!!.....and she was soooo positive!!!! I reckon you could write a book about all these war stories as a fund raiser for a charity!!! There's hundreds of such stories and all inspirational. You have to meet the kids to know what I mean.

Tomorrow night, Camp Quality NSW is doing Pizza in the ward so Julie & I will try and both have dinner with the other two kids for the first time in a while, seeing as we'll be in the ward and within easy reach for Lauren.