Friday 15 January 2016

Still in RAH fighting infection

Lauren's foot is improving a lot of late. At last I can actually see the improvement. Her biliary reading has been high and yellow eyes recently has meant a few tests & scans. Especially as one possible side effect of Inotuzumab is VOD. Basically a liver disease. Anyway, tonight the Doc confirmed after the scan it's not that!!! Soooo relieved. Possibly just a reaction to antibiotics she's been on. One of which they've changed which should manage this (biliary reading) better.
We're now so close to going to Melbourne to complete the trial, we don't need any more hurdles. She's also regularly spiking fevers daily, so still in the RAH. Also on a massive concoction of drugs which are impacting her. Coming off steroids hasn't helped, although glad to see her off them.

Lauren is flying across (to Melbourne) on Monday via RFDS and being admitted straight into RCH Melbourne. With her fevers, they don't want her driving across with her mother & siblings on Sunday. Melbourne can't come soon enough. RCH will treat the infection and run tests to prepare for the trial. The infection has to be cleared up first.

Lauren hasn't seen it yet, but when she's back it'll be into a new house. 20,000 cranes made the journey there yesterday. They needed their own truck, they take up so much room!! (Thanks Jen F et al!!! Can't just throw them away when they're doing such a good job in looking after Lauren's (& others' wishes). So 20,000 are in her new room for when she returns, late Feb/early March.

Will confirm Monday how things go with the travel.

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