Thursday 10 December 2015

Not home yet, but hopefully not far off

I knew I shouldn't have said Lauren should be home by last weekend. She's still in (RAH). Had severe bone pain last week and this week which she's now able to manage with oral drugs. Not sure if this was the progression of the disease (leukaemia) as her blast counts had jumped in the bone marrow biopsy in Melbourne last week, or if it's nerves being pinched from the tumour on her spine - which she is now under radiotherapy for. Which is daily for two weeks (not three weeks as mentioned in my last post).

She had her second dose of Inotuzumab again today and that seems to be doing it's job. Blast counts (leukaemia cells) have disappeared from peripheral blood readings since being admitted into RAH last week.

In terms of next treatment for a solution, her T-Cells (immune cells) should be on their way to the USA today or this week for 'manufacturing' booked for Dec 29. This is where they will genetically modify her T-Cells to recognise a marker on her blast cells, then reproduce these in the laboratory and send them back to Melbourne for infusion - at this point we're planning for this in February 2016.

Thanks to Annie this week for an awesome massage she gave Lauren. It really helped.


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