Sunday 21 February 2016

Day +6 (Sunday) 1 year since relapse (3rd bout of ALL Leukaemia)

More of the same today. Fevers. Temps getting a bit higher now.

One year ago today (21 Feb 2015) took Lauren to the Arkaba Medical Centre for a bleeding nose. She thought she'd been overdoing it a bit at College with her acting classes/performances. Turned out to be a huge surprise for both of us. They sent for bloods straight away and that night started this journey over the next year!! No need to repeat it - that journey's in this blog already. Where we are today wasn't even envisaged as a treatment option a year ago!! We were going to Germany for treatment, then Pfizer supplied the drug Inotuzumab under compassionate grounds because Amgen wouldn't release theirs at the time (even to be purchased), that (Pfizer drug) allowed us to stay in Adelaide. Then we were supposedly on a waiting list for a clinical trial in Washington DC and miraculously the trial at RCH Melbourne opened up in October 2015 and Lauren fitted the trial criteria perfectly, so here we are, fevers and all. Seems to be going to plan. One day at a time.

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