Wednesday 28 October 2015

The Royal Children's Hospital Melbourne

Lauren is in Melbourne today to investigate a new treatment/trial (global) which has commenced at the Royal Children's Hospital Melbourne. Sounds like Lauren is blown away by the infrastructure there. Even has it's own Hoyt's cinema!!

Anyway, funny looking back when we came to forks in the road re treatment(s) we went down some tracks, thinking it was the poor cousin within a trial, only to find out now, the fact some treatments weren't selected randomly has actually potentially opened new doors through new trials rather than closing them, which some drugs usage would have done.

The one the RAH gave me an ~88K euro bill for last week turns out is one of the drugs that would preclude us from these current new trials. Thank goodness someone there was arrogant enough not to answer the questions I raised to make an informed decision on paying the bill. Otherwise we might have gone down the wrong path!

This treatment effectively replaces the CAR T-Cell treatment in Washington Lauren was allegedly on the wait list for. No more 'flying under the radar' and hopefully explains why I never put those proposed treatments in the blog previously. Hopefully now we can operate with transparency. Not out of the woods yet, but seem to be possibly progressing again.

On a separate note, New Idea published the #cranesforlauren article last week - page 44 if you have it.

1 comment:

  1. The one the RAH gave me an ~88K euro bill for last week turns out is one of the drugs that would preclude us from these current new trials. Thank goodness someone there was arrogant enough not to answer the questions I raised to make an informed decision on paying the bill. Otherwise we might have gone down the wrong path! www.cancerhelpline.in

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