Monday 10 August 2015

Waiting on results of last Tuesday's bone marrow biopsy

Lauren finished her second cycle of the drug IZOTUZUMAB a couple of weeks ago. Blood results of late haven't shown any blast cells in the blood pathology readings, which is encouraging. The results we're waiting for to decide where to go from here are the bone marrow biopsy which was performed last Tuesday. This waiting is nothing but shit. We should find out soon. Appointment is this Wednesday with her treating Doctor.

She's been home except for the occasional visit to the RAH for platelet transfusions. One bleeding nose particularly severe, she stayed in Emergency overnight - that took her straight into her bone marrow biopsy last Tuesday and home from there.
Only other unscheduled visit was yesterday due severe pain she was experiencing from the bone marrow biopsy. Looks like a pinched nerve or something similar. We know (myself and the nurses), Lauren has a high tolerance to pain, but the way she was this weekend, you could easily tell it was severe. Anyway, the pain killers prescribed are managing discomfort, which might last a couple to a few weeks. Hopefully that's all. Whilst in she got a bleeding nose again, so more platelets and then home again.

Her face is still puffed up from the steroids, even though she's being weened off them, so no photos. Her hair is growing back quickly and half her luck, much longer than mine (that happened after one day)!!!

So this week, we're waiting on the results of the bone marrow biopsy and then it's either go into transplant (stem cell) or look at alternatives. Everything crossed for the result to be REMISSION!!!

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